Making real change happen.
Bowel Cancer Australia is the trusted national voice on bowel cancer, championing what matters most to people affected by bowel cancer.
Over the past two decades, advancements have occurred in prevention, detection, research, and treatment of bowel cancer, and with your support, Bowel Cancer Australia has played a leading role.
Our financial independence affords us the freedom to be a dissenting voice as required and has enabled us to invest in priorities that lead to meaningful change, influence public policy, engage more people in life-saving conversations, focus support on patients’ needs, and fund vital research.
Timeline of events and our achievements
“People aged 45-49 now eligible to request a free NBCSP screening test
Bowel Cancer Australia welcomed another milestone in its six-year campaign, with the Australian Government lowering eligibility for bowel cancer screening from age 50 to 45, as announced in the Federal Budget.
From 1 July 2024, an additional 1.6 million Australians aged 45-49 will be eligible to request a screening test from the National Bowel Cancer Screening Program. Once a person aged 45-49 opts-in to the Program, they will receive a screening test every two years.National Bowel Cancer Screeing Program
”
“Bowel Cancer Australia launches Australia’s Deadliest campaign
Developed by Ogilvy Health, Australia’s Deadliest uses a unique approach for a cancer awareness campaign, leaning into the imagery and style of tabloid journalism to tell real and confronting stories about bowel cancer.
Stephanie Bansemer-Brown, Marketing and Publicity Manager, Bowel Cancer Australia, said: “The incredible teams at Ogilvy Health and AIRBAG Productions were thoughtful, considered, and collaborative to ensure the authentic voice and reality of people living with early-onset bowel cancer were at the heart of the campaign.”
“As a bowel cancer survivor, I am so proud of this campaign and the bravery of Nina, Jake, Rachel, Kin, and Anthony who feature in it, to highlight the impact of this disease on younger Australians.”
”
“Bowel Cancer Australia announces $600k early-onset bowel cancer research project
Bowel Cancer Australia announced a team led by Professor Michael Samuel as the successful applicant for a three-year $600k early-onset bowel cancer research project through the 2023 round of Cancer Australia’s Priority-driven Collaborative Cancer Research Scheme (PdCCRS).
Professor Samuel of the Centre for Cancer Biology (an alliance between the University of South Australia and SA Pathology) and the Basil Hetzel Institute for Translational Health Research will investigate ROCK-induced early-onset bowel cancer progression.
ROCK, Rho-associated kinase, is an enzyme (protein) found in all of us, that controls the shape and movement of cells within the body. ROCK goes into overdrive in people with bowel cancer, accelerating the growth and spread of the disease.Unearthing the bedrock of early-onset bowel cancer
”
“Bowel Cancer Australia launches Parliamentary Friends of Bowel Cancer
Bowel Cancer Australia along with co-chairs Mr Steve Georganas MP and the Hon Dr David Gillespie MP launched the Parliamentary Friends of Bowel Cancer, a non-partisan forum for parliamentarians to meet and interact with Bowel Cancer Australia and discuss matters relating to bowel cancer.
The Group was formed following the inaugural 2023 Call on Canberra event where early-onset patients met with MPs and Senators.”
“The Movement – Wellness Beyond Diagnosis reaches 1,000 members!
The Movement is Bowel Cancer Australia’s closed nurse-moderated Facebook group, developed by bowel cancer patients for bowel cancer patients and their loved ones.
With monthly guest expert sessions and facilitated live catch-ups, The Movement is a place for you to learn about bowel cancer and connect over shared lived experiences.
Overcoming the barriers of hospital-based survivorship programs, The Movement provides equitable access to care and offers peer support, community connection, and expert resources to help you better understand bowel cancer and treatment side effects.The Movement – Wellness Beyond Diagnosis
”
“Irregular Chocolates
Bowel Cancer Australia collaborated with Artist, Chef and Food Designer, Ryan L Foote on a box of Irregular Chocolates crafted to prompt an unconventional conversation and raise awareness of early-onset bowel cancer on Valentine’s Day.
Bowel Cancer Australia worked with Ryan to bring the Irregular Chocolates campaign to life with his thoughtful design of four bespoke chocolate abstracts, each representing a different bowel cancer symptom.
Ryan is well known for creating chocolate that is both visually engaging and reflective of contemporary design. With unexpected flavours and innovative recipes, he has applied his unique talent on this important awareness campaign
Each unique 3D designed and printed chocolate has been meticulously crafted, creating a premium and indulgent experience with an exquisite flavour profile.
”
“Bowel Cancer Australia and Icon Cancer Centre close the care gap
Despite bowel cancer being the third most diagnosed and second deadliest cancer in Australia, bowel cancer patients do not receive the same level of support as other common cancers, with eight in ten bowel cancer patients identifying access to a specialist nurse in-person or by phone as one of the most important aspects of their care coordination.
Bowel Cancer Australia has been working to close that gap over the past twelve years by providing telehealth support to bowel cancer patients across Australia, long before it became common practice.
A new collaboration between Bowel Cancer Australia and Icon Cancer Centre will help to further close the care gap by placing specialist Bowel Care Nurses in select Icon Cancer Centres across Australia, and providing more bowel cancer patients with the care they deserve, as close to home as possible, so they can live their best life.”
“New Early-Onset Bowel Cancer Guidelines
If you have been diagnosed with early-onset bowel cancer (< age 50), you have likely been managed according to clinical practice guidelines that are not age specific. Until now.
As part of Bowel Cancer Australia’s #N2Y Advocacy Agenda, we have summarised the first consensus recommendations for early-onset bowel cancer, helping empower patients to be advocates for their own health.
In 2023, a multidisciplinary international group (DIRECt), composed of a panel of 69 experts, was convened to develop the first evidence-based consensus recommendations for early-onset bowel cancer.
31 statements were produced across various topics, including: risk factors; symptoms, endoscopic detection, diagnosis, and treatment; genetics; pathology; surgery; oncological treatment; fertility; supportive care; and surveillance. Each statement underwent three rounds of voting and reached a consensus level of agreement of ≥80%.Early-Onset Bowel Cancer Guidelines
”
“Lawrence Penn Chair secures another $771,000 in funding
2023 marked the fifth anniversary of Professor Mark Molloy’s appointment as the Lawrence Penn Chair of Bowel Cancer Research.
The University of Sydney’s partnership with Bowel Cancer Australia provides a vital platform for accelerating global efforts to reduce the burden of bowel cancer through pioneering research.
With Bowel Cancer Australia’s support, Professor Mark Molloy and his team of talented scientists continue to pursue a range of exciting research projects to unlock discoveries that could improve patient outcomes.
In 2023, Professor Mark Molloy was successful in securing funding from the Department of Education, National Industry PhD Program; a NHMRC Equipment Grant; NSW Health Data Science Support; as well as supporting funds from the Bowel Cancer Research Foundation, with a combined total of $771,000.
”
“Bowel Cancer Australia helps things run smoother with new bowel prep resource
Bowel Cancer Australia launched a new resource to help patients ‘bowel prep’ prior to colonoscopy.
In Australia, inadequate bowel prep is observed in around 7% of all colonoscopies. With more than 900,000 colonoscopies performed annually in the country, this can equate to as many as 63,000 inadequate bowel preparations leading to poor or cancelled colonoscopies.
Inadequate bowel prep can lead to the cancellation of a colonoscopy and having it rescheduled, which impacts waitlists. If the colonoscopy does proceed, it can be less effective as polyps and bowel cancer are more likely to be missed due to poor visibility.
The new bowel prep resource provides a list of easy steps for users to follow, reminders at each step, and videos to help explain the bowel prep and white / low-residue diet. Users can amend the timing of steps as advised by their colonoscopist, if needed.”
“45 is the new 50: recommended screening age drops
A key five-year Bowel Cancer Australia campaign reached a milestone with the National Health and Medical Research Council (NHMRC) endorsing updated clinical practice guidelines lowering the recommended bowel cancer screening start age to 45.
For the first time, population screening (for people at average risk, without symptoms) is recommended for people aged 45-74 (previously 50-74), along with a recommended drop in the National Bowel Cancer Screening Program (NBCSP) start age from 50 to 45.
People aged 40-44 (previously 45-49) are able to request screening every two years via their GP prior to receiving their first NBCSP invitation once the age drops to 45.
After years of tireless advocacy, Bowel Cancer Australia remains grateful to our passionate team of advocates for their support in raising awareness of early onset bowel cancer.
However, work remains, and we are now calling on the Federal Government to approve, fund and implement the lower NBCSP screening start age to stop people dying from early-onset bowel cancer.”
“Review of MBS colonoscopy item changes
On 1 November 2019, a number of changes to colonoscopy and related items came into effect, resulting in eight new MBS items and the removal of four existing items.
The new Medicare item numbers for colonoscopy were the most dramatic change since they were created, and while there are no restrictions for people accessing colonoscopy if they have new symptoms or a positive screening test result, many patients with a personal or family history of the disease have been affected, resulting in stress and anxiety.
In 2023, the Working Group sought feedback on the 2019 changes as well as a recommendation requiring further consultation to limit direct access to colonoscopy for anyone who does not have a positive screening test result or history of blood in the stool.
Given people under the age of 50 have an increased risk of developing bowel cancer when they experience one or more symptoms of abdominal pain, rectal bleeding, diarrhoea and iron deficiency anaemia between 3 months and 2 years prior to diagnosis, Bowel Cancer Australia expressed a concern that limiting direct access to colonoscopy could lead to significant delays in diagnosis.”
“RAM Motorsport raises over $158,000 with Bowel Cancer Australia livery on Mercedes-AMG GT3
Following his bowel cancer diagnosis and surgery, Michael Sheargold created the N2YGT3 campaign to raise funds for Bowel Cancer Australia with the Mercedes-AMG GT3 displaying a brand new Bowel Cancer Australia livery.
Sheargold made a miraculous comeback to racing, just six weeks after undergoing major bowel cancer surgery, and with chemotherapy yet to commence.
The Bowel Cancer Australia Mercedes-AMG GT3 was driven by Sheargold and Walden at the Fanatec GT World Challenge in Australia, a Supercars Championship event.”
“Bowel Cancer Australia raises $365,000 through Dry July
Thanks to the support of 728 fundraisers, Dry July 2023 raised over $365,000 for Bowel Cancer Australia, helping to expand support with a new Online Survivorship Community and Resource Hub (Bowel Care Nurse Moderated Facebook Group), a new member of the psychosocial support team, and an additional in-person Bowel Care Nurse.
Bowel Cancer Australia’s integrated Bowel Care Nursing program supports the employment of dedicated part-time Bowel Care Nurses in regional communities across the country. Acting as a key point of contact for bowel cancer patients and their families as they navigate the health system in their local area – providing advice, education, support and direct patient care.”
“Inaugural Call On Canberra
On Tuesday 20 June, Australians from around the country impacted by early-onset bowel cancer visited Parliament House to participate in Bowel Cancer Australia’s inaugural Call on Canberra to raise awareness and advocate for important policy change.
Too often, younger Australians with bowel cancer symptoms find themselves self-advocating as the only consistent and reliable resource for overcoming age bias, barriers to diagnosis, and optimising outcomes for a disease that is not only on the rise, but the deadliest cancer for those aged 25-44.
Youthfulness should not be a barrier to timely diagnosis.”
“National Bowel Cancer Screening Program data released
National Bowel Cancer Screening Program
- 6.09 million people were invited to participate in the NBCSP in 2020-21.
- 2.49 million people participated (40.9%).
- Only 15.6% of participants were recorded as receiving a follow-up colonoscopy within the recommended 30-day time frame.
- Of those participants who received the procedure following a positive screen, the wait varied between 119 and 235 days, depending on the State/Territory they lived.
”
“Bowel Cancer Australia launches final instalment of bold awareness campaign
The final instalment of Bowel Cancer Australia’s bold ‘Give a $#*! About Your Bowel’ advertising campaign featuring acclaimed actress Miriam Margolyes OBE aired in the lead up to Bowel Cancer Awareness Month 2023.
The 2023 campaign focused on ‘cancer’ with a clear message that when caught early almost 99% of bowel cancer cases can be successfully treated. It completed the three-part series featuring a computer-generated model with a ‘talking bowel’ and followed on from the previous ‘bowel’ and ‘polyp’ focuses.
”
“Psychosocial support team expands
Bowel Cancer Australia supports patients and their families who have been affected by bowel cancer, by providing holistic specialist psychosocial care throughout the continuum – from diagnosis, treatment, recovery and living beyond bowel cancer, to palliative care and bereavement.
With specialist knowledge in cancer oncology, palliative care and therapeutic counselling, our psychosocial support team can offer telehealth support that addresses the needs of patients and their loved ones.”
“Call for early-onset bowel cancer research grant applications
Bowel Cancer Australia was again a Funding Partner for the 2023 Round of the Priority-Driven Collaborative Cancer Research Scheme, committing $600,000 in funding over three years.
Through the Cancer Australia managed scheme, Bowel Cancer Australia seeks to support innovative and collaborative research across all aspects of early-onset bowel cancer (i.e. people diagnosed under age 50) that has the potential to improve survival and/or help build a path toward a cure.
The Priority-Driven Collaborative Cancer Research Scheme is an innovative annual national research project grants funding scheme which brings together government and other funders to collaboratively fund cancer research in Australia.
”
“New Bowel Care Nurse appointed in Ballarat
Grampians Health was delighted to welcome a new dedicated Bowel Care Nurse, a position funded by Bowel Cancer Australia to provide tailored support to bowel cancer patients across the region.
Jaymee Goldsmith, a registered nurse with specialist knowledge and experience caring for patients with bowel cancer, is now working two days a week at Ballarat Base Hospital and St John of God Hospital Ballarat to support bowel cancer patients across the Grampians region and assist them in their treatment journey.
The funding for the Grampians region’s dedicated Bowel Care Nurse position was made possible through Bowel Cancer Australia with the generous support of the Dry July Foundation.
”
“$558,000 in grants secured by the Lawrence Penn Chair of Bowel Cancer Research
The National Health and Medical Research Council (NHMRC) grants $282,414 to research metformin, an anti-diabetic treatment, in suppressing bowel polyps via the microbiome.
Sydney Cancer Partners award $120,000 for a rectal cancer pilot study.
Co-funding from Tour de Cure and the Bowel Cancer Research Foundation of $155,670 to research reliable prognostic biomarkers following colorectal liver metastases surgery.Lawrence Penn Chair of Bowel Cancer Research
”
“Bowel Cancer Australia representative joins APAA Steering Committee
Stephanie Bansemer-Brown, stage 3 bowel cancer survivor, was appointed to the Australian Patient Advocacy Alliance’s (APAA) Steering Committee as a representative of Bowel Cancer Australia.
The APAA is governed by a voluntary steering committee to ensure alignment of the activities with the needs of alliance member organisations.”
“Bowel Cancer Australia Medical Director awarded an Honorary Fellowship
Bowel Cancer Australia Medical Director A/Prof Graham Newstead AM is awarded an Honorary Fellowship of the American College of Surgeons (ACS).
According to the ACS, individuals selected for Honorary Fellowship generally practice outside of the United States, possess an international reputation in the field of surgery or medicine, and have
provided distinguished humanitarian service in the field of medical science.
Bowel Cancer Australia CEO, Julien Wiggins congratulated Dr Newstead, acknowledging, “his exceptional clinical knowledge, selfless dedication and passion for reducing bowel cancer incidence and mortality through awareness and screening throughout his 40+ year career.”
”
“National Bowel Cancer Screening Program data released
National Bowel Cancer Screening Program
- 5.75 million people were invited to participate in the NBCSP in 2019-20.
- 2.52 million people participated (43.8%).
- Only 15.1% of participants were recorded as receiving a follow-up colonoscopy within the recommended 30-day time frame.
- Of those participants who received the procedure following a positive screen, the wait varied between 113 and 190 days, depending on the State/Territory they lived.
“Only 39 - Ride for Bowel Cancer Awareness
David & Mark rode on Honda CT10 postie bikes from Wilsons Promontory to Cape York and back (the most southern to the most northern points of mainland Australia), in just four weeks, with the support of their friend Mark (Ace).
”We chose postie bikes and this particular route, as both were extremely challenging, particularly in the proposed amount of time, that tested our physical and mental strength and endurance. Something to best represent the mental and physical challenges that their brother Matt faced with his battle.””
“Bowel Cancer Australia attends Australian Patient Advocacy Alliance (APAA) Summit
The summit provided a forum for peak consumer health organisations to collaborate and determine shared issues and potential solutions to inform the APAA’s advocacy strategy.
The APAA seek an health technology assessment (HTA) system where patients are viewed as a third party in equal partnership with government and industry evidenced by a process that puts the authentic voices and experiences of patients at the very centre of decision making – every step, every element.
The APAA is seeking holistic, person-centred healthcare where every Australian receives the care they need – when needed, where needed, leading to improved health outcomes.”
“Bowel Cancer Australia represented at the Department of Health & Aged Care Roundtable
Patient organisations roundtable with the Department of Health & Aged Care convened to discuss specialist nurse support for people with cancer, loved ones and communities as well as workforce considerations.”
“Bowel Cancer Australia Medical Director meets with the Minister for Health & Aged Care
A/Prof Graham Newstead AM and The Hon Mark Butler MP meet to discuss Bowel Cancer Australia’s advocacy priorities, including the need to lower the screening age to 45, funding for specialists bowel care nurses and research.”
“$100,000 grant secured by the Lawrence Penn Chair of Bowel Cancer Research
The University of Sydney Faculty of Medicine and Health provide a Research Performance Grant of $100,000 to further study the immune cell involvement in colorectal polyp growth.Lawrence Penn Chair of Bowel Cancer Research
”
“$384,000 raised for Bowel Cancer Australia through Dry July
Funds raised through the Dry July initiative will help to deliver practical, tangible support services for bowel cancer patients, their families and carers, plus invaluable services like Bowel Cancer Australia’s integrated Bowel Care Nurse program, enabling more patients to receive dedicated support in their local community.”
“National Bowel Cancer Screening Program (NBCSP) Review submission
Bowel Cancer Australia continues to advocate for lowering of the screening start age from 45 in its submission to the NBCSP Review as the latest Australian and international research reveals bowel cancer rates in under 50s have increased significantly over the past three decades.
All major US Guidelines (American Cancer Society; the American College of Gastroenterology (ACG); the United States Preventive Services Task Force (USPSTF); and the US Multi-Society Task Force (MSTF) on Colorectal Cancer) now endorse average-risk bowel cancer screening from age 45 in response to the rising rates of bowel cancer in young and middle-aged populations.”
“Bowel Cancer Australia appoints Bowel Care Oncology Social Worker
Our telehealth support services nationwide are expanding with a newly appointed Bowel Care Oncology Social Worker.
The Oncology Social Worker supports patients and their families who have been affected by bowel cancer, by providing holistic specialist psychosocial care at all stages throughout the care continuum – from diagnosis, treatment, recovery and living beyond bowel cancer, to palliative care and bereavement, depending on your circumstances.
With specialist knowledge in cancer oncology, palliative care and therapeutic counselling, the Oncology Social Worker can offer telehealth support that addresses the psychosocial needs of patients and loved ones.Bowel Care Oncology Social Worker
”
“Bowel Cancer Australia launches The Movement – Wellness Beyond Diagnosis
The Movement is a nurse moderated and supportive online community for bowel cancer patients and carers.
The closed Facebook Group features monthly presentations by healthcare professionals from across the care continuum, access to resources, as well as ‘coffee chats’ to connect with one another.The Movement - Wellness Beyond Diagnosis
”
“Bowel Cancer Australia launches a bold new awareness campaign
Voiced by internationally acclaimed actress, Miriam Margolyes, for Bowel Cancer Awareness Month 2022, the new advertising campaign, ‘Home to one of Australia’s most preventable cancers’, features a computer-generated female model to create a high-impact commercial that focuses on polyps growing inside a ‘talking bowel’.
”
“Bowel Cancer Australia participates in the GCCA Biosimilars Training Program
Bowel Cancer Australia participated in the the Biosimilars Training Program for patient advocacy organisations, hosted by the Global Colon Cancer Association in partnership with the World Patients Alliance.
Bowel Cancer Australia CEO presented on the Australian experience of forced substitution and impact, specifically in the context of metastatic bowel cancer.PBS changes to impact metastatic bowel cancer patients on Avastin
”
“$835,000 in grants secured by the Lawrence Penn Chair of Bowel Cancer Research
The Australian Research Council Linkage, Infrastructure, Equipment and Facilities (LIEF) scheme provides a $535,000 grant to investigate biological processes in tissues by spatial profiling. Co-funding of $250,000 from the University of Sydney Core Research Facilities and $50,000 from Macquarie University will enable this system to be installed at The Kolling Institute.
The system will enable researchers to study biological processes associated with health and disease, and better understand the different cells driving these processes.Lawrence Penn Chair of Bowel Cancer Research
“Bowel Cancer Australia unites in blue with Fight Colorectal Cancer
Joining international charity partner Fight Colorectal Cancer, Bowel Cancer Australia lends support to the United in Blue installation and the hosting of a rally with members of Congress, advocacy and industry partners, physicians and leaders from the White House, National Cancer Institute and Centers for Disease Control and Prevention.
”
“Bowel Cancer Australia participates in the 2022 Global Colorectal Cancer Congress
The 2022 Global Colorectal Cancer Congress: Our Time Has Come brings together over 200 participants to create tangible change through advocacy.”
“Bowel Cancer Australia hosts young-onset webinar
The webinar series, Young-onset bowel cancer: Breaking Down the Barriers, is moderated by bowel cancer survivor and former member of parliament, Margaret Fitzherbert.
”Having experienced bowel cancer as a patient and viewed it through the prism of public policy, I’ve learned that there are many ways we can improve survival rates. What’s lacking is the will. With bowel cancer now the deadliest cancer for people aged 25-44, this must change,” says Margaret.
”
“$250,000 in grants secured by the Lawrence Penn Chair of Bowel Cancer Research
The Ian Potter Foundation provides a $125,000 grant to fund a laser capture microdissection microscope for spatial molecular profiling of tissues. Co-funding of $125,000 from the University of Sydney Core Research Facilities will enable this system to be installed at The Kolling Institute. The system will be used to discover biomarker proteins from specific regions of bowel tumours.Lawrence Penn Chair of Bowel Cancer Research
“New Bowel Care Nurse in Shepparton
Newly appointed Bowel Care Nurse provides in person nursing services in the Shepparton community, helping patients and loved ones affected by bowel cancer.
“It’s really rewarding because you’re supporting somebody through what is a pretty difficult time and being based locally you understand the barriers like getting to a Melbourne appointment. People have got one person they can call and instead of getting that run around, I can help organise that for them,” says Shepparton Bowel Care Nurse Lynda.
”
“Braftovi becomes the first targeted therapy to be PBS-listed for BRAF V600E-variant metastatic bowel cancer patients
Braftovi in combination with Erbitux now a subsidised treatment option for patients with BRAF V600E-variant metastatic bowel cancer who have not responded to a prior systemic therapy.”
“The Bottom Line Podcast host wins CSSANZ Media Award
Bowel Cancer Australia Marketing and Publicity Manager and bowel cancer survivor, Stephanie Bansemer-Brown, wins the Colorectal Surgical Society Annual Media Award for The Bottom Line Podcast.
Hosted by Stephanie, The Bottom Line shares stories and lived experiences and hears from the health professionals who treat those navigating the bowel cancer journey. It aims to encourage and inspire by addressing a range of issues around bowel cancer treatment and care in an easily accessible format which enables knowledge to be shared with a broad audience.”
“Bowel Cancer Australia’s call to lower screening start age further reinforced
The US Multi-Society Task Force (USMSTF) on Colorectal Cancer (representing the American College of Gastroenterology; the American Gastroenterological Association; and the American Society for Gastrointestinal Endoscopy), update their guidelines, recommending people at average risk of bowel cancer begin screening from age 45 rather than 50.”
“Bowel Cancer Australia’s input sought during NMP Review stakeholder consultation
During the consultation, Bowel Cancer Australia highlights the need to centre the entire health system around its purpose: outcomes for patients. The National Medicines Policy (NMP) Review was commissioned by the Minister for Health and designed to support a refresh of the NMP as a high-level policy framework, to accommodate the considerable evolutionary changes across Australia’s health system over the last twenty years and how they can be reflected in the policy into the future.
”
“Bowel Cancer Australia invited to share insights and ideas to guide the NBCSP Alternative Pathways Program
The consultation process is sponsored by the Australian Government Department of Health to develop a strategy to increase screening among Aboriginal and Torres Strait Islander community members and other underrepresented groups.
“Tasmanian Budget delivers additional funding for elective surgery
As part of a $40m top up, funding for an additional 7,000 elective surgeries is promised, on top of funding committed to at the State Election for an extra 22,300 surgeries and endoscopies.”
“Keytruda becomes the first immunotherapy to be PBS listed for bowel cancer
Following a submission by Bowel Cancer Australia which includes the personal experience of Alisanne Ryde, who self-funded the treatment to extend her life, Keytruda is listed as a first-line treatment option in adults with previously untreated unresectable or metastatic deficient mismatch repair (dMMR) bowel cancer.
”
“$527,000 for Bowel Cancer Australia through Dry July
Funds raised through Dry July will help to deliver practical, tangible support services for bowel cancer patients, their families and carers, as well as the inaugural Bowel Care Oncology Social Worker.
”
“Room for the Patient View held in Great Hall at Parliament House (Canberra), featuring patients for the first time
During the event, patients share personal health experiences and the journey from diagnosis through to accessing treatment, including innovative medicines. Understanding what matters to patients in the health system is extensively explored, including how best to incorporate the patient view in the regulatory and reimbursement process, and how we can work to improve timely access to new and innovative treatments. Bowel Cancer Advocate Nicole Cooper shares her personal experience and highlights the critical need for patients to be included at every step of the process.
”
“National Bowel Cancer Screening Program data released
National Bowel Cancer Screening Program
- 5.74 million people were invited to participate in the NBCSP in 2018-19.
- 2.49 million people participated (43.5%).
- Only 15.5% of participants were recorded as receiving a follow-up colonoscopy within the recommended 30-day time frame.
- Of those participants who received the procedure following a positive screen, the wait varied between 112 and 173 days, depending on the State/Territory they lived.
“Rally on Research EAO CRC (young-onset bowel cancer)
More than 500 thought leaders, researchers, clinicians, and patient advocates from 35 countries across six continents come together to discuss the impacts of the rising rates of EAO CRC and what the advocacy and medical community can do to change this trend.
”
“Red Apple Day at Parliament House
Colorectal surgeon, Graham Newstead AM and Ambassador Donna Hope, advocate in Parliament House on Red Apple Day for expansion of the NBCSP to include people aged 40-84 (currently 50-74), highlighting Australia’s favourable overall trends in bowel cancer incidence and mortality are masking an increase in young-onset bowel cancer, an uptick that began in the mid-1990s.”
“Avastin withdrawn from the PBS
Patients receiving the biologic drug Avastin are force-switched to the newly listed biosimilar Mvasi unless they choose to self-fund treatment with Avastin.
“Bowel Cancer Australia releases report warning of impending bowel cancer crisis
The report highlights the impact of the COVID-19 pandemic on bowel cancer diagnosis and the risk of stage migration, resulting in poorer outcomes and an increase in deaths.
COVID-19 & the Impending Bowel Cancer Crisis
”
“Patients take stage at BioPharmaDispatch Conference
For the first time, patients are invited to present at the annual industry conference. Bowel Cancer Australia advocate Nicole Cooper shares her experience living with metastatic bowel cancer and calls for industry and government to engage with patients across the continuum of care.
”
“Bowel Cancer Australia strengthens call to lower screening start age
The call coincides with the US Preventive Services Task Force (USPSTF) updated recommendation – for the first time - lowering the bowel cancer screening age from 50 to 45 for average-risk individuals.
“Bowel Cancer Australia attends Ministerial Roundtable at Parliament House to discuss National Cancer Plan
Convened by Cancer Australia, the Roundtable marks the first step in the development of a ten-year Australian Cancer Plan to enable comprehensive and inclusive engagement and consultation with stakeholders across the cancer control continuum.
”
“Bowel Cancer Australia appears before inquiry into approval processes for new drugs and novel medical technologies in Australia
At the hearing, Bowel Cancer Australia shares stories from patients highlighting the urgent need for improved access to affordable treatment options, citing a history of long delays before PBS listings.”
“Inaugural PhD recipient of The Penelope Morris Foundation $165,000 Scholarship announced
As the recipient of the highly coveted Penelope Morris Foundation PhD scholarship offered through The University of Sydney, Dr Mudy De Silva focuses his studies on the molecular analysis of young onset bowel cancer under the supervision of Lawrence Penn Chair Professor Mark Molloy and eminent medical oncologist, Professor Stephen Clarke.Molecular analysis of young onset bowel cancer
”
“Bowel Cancer Australia funds Bowel Care Nurse on the Sunshine Coast
Bowel Cancer Australia partners with Bloomhill Cancer Centre to support the first dedicated Bowel Care Nurse in the Sunshine Coast region, providing patients with a constant, dedicated point of contact throughout their care, and offering ongoing support during and after treatment.”
“Bowel Cancer Australia expands telenursing and telenutrition support services nationwide
Described as a ‘lifeline’ by patients and their loved ones, the telenursing and telenutritionist service provides personalised care and tailored support. With expertise in intensive care, oncology, stomal therapy, and nutrition the friendly telehealth team assist patients, family, friends, and concerned members of the community.Bowel Care Nurses | Bowel Care Nutritionists
”
“The Department of Health commissions a review of the NBCSP
The independent and comprehensive review measures the extent to which the program is meeting its objectives and will inform further program improvements. Identified as a key stakeholder, Bowel Cancer Australia contributes critical input as part of the review.National Bowel Cancer Screening Program
“National Preventative Health Strategy
As a member of the Australian Patient Advocacy Alliance (APAA), Bowel Cancer Australia shares the vision of a society that prioritises prevention to reduce the current and potential impact of chronic conditions. Together, we call for the voices of consumers to be at the core of developing the National Preventative Health Strategy.
”
“New report calls to lower bowel screening age to 45
Developed by The Demographics Group and commissioned by Bowel Cancer Australia, the Protecting nine million Australians: the case for screening from age 45 report examines the growing impact of bowel cancer in people under 50 and the benefits of lowering the screening age. Its release coincides with the recent October recommendation from the United States Preventive Services Task Force (USPSTF) for screening to start at age 45.
Protecting nine million Australians: the case for screening from age 45
”
“Bowel Cancer Australia joins the CCC (Continuity of Care Collaboration)
The unique and first of its kind communication collaboration of over 35 peak bodies, industry and healthcare organisations unite to stress the importance of continuing with health management during the COVID-19 pandemic.Continuity of Care Collaboration
”
“Inquiry into approval processes for new drugs and novel medical technologies commences
The Committee is chaired by Trent Zimmerman MP. The Committee is tasked with reviewing input from the public, health professionals and organisations, pharmaceutical companies and others on how Australia can position itself best on providing access to new drugs and novel medical technologies for all Australians now and into the future.
Bowel Cancer Australia makes a submission, highlighting the limited number of treatment options available for metastatic bowel cancer patients, despite bowel cancer being the third most diagnosed cancer and Australia’s second deadliest cancer.”
“Bowel Cancer Australia launches The Bottom-Line Podcast
Stephanie Bansemer-Brown hosts a monthly chat with people living with or beyond bowel cancer, as well as health professionals involved in bowel cancer treatment and care.
”
“National Bowel Cancer Screening Program data released
National Bowel Cancer Screening Program
- 5.07 million people were invited to participate in the NBCSP in 2017-18.
- 2.15 million people participated (42.4%).
- Only 15.8% of participants were recorded as receiving a follow-up colonoscopy within the recommended 30-day time frame.
- Of those participants who received the procedure following a positive screen, the wait varied between 111 and 228 days, depending on the State/Territory they lived.
“Bowel Cancer Australia launches patient-led PROMs platform, My Bowel Cancer, My Voice
The online tool enables patients to communicate how their diagnosis and treatment is affecting them, from their personal perspective, using scientifically validated questionnaires based on the internationally recognised ICHOM Colorectal Cancer Standard Set of patient-reported outcome measures (PROMs). The questionnaires can be completed at home or in the waiting room in less than 15 minutes, and specialists can view patient responses, along with a detailed scoring summary, within the My Bowel Cancer, My Voice clinician dashboard.”
“Prime Minister and MPs show their support of Red Apple Day
At a Parliamentary reception, Katie Allen MP, David Gillespie MP and Prime Minister Scott Morrison show their support for the work being done by Bowel Cancer Australia on behalf of tens of thousands of patients and carers affected by the nation’s second deadliest cancer.”
“New data released by AIHW reveals impact of Bowel Cancer Awareness Month
Dating back to 2014, the numbers show more National Bowel Cancer Screening Program (NBCSP) kits are completed in the June and September quarters every year than at any other time, highlighting the important influence Bowel Cancer Australia’s annual awareness campaign has on people’s behaviour.Bowel Cancer Awareness Month impact
”
“New mutations in bowel cancer patients listed on the MBS for genetic testing
Heritable mutations associated with the clinical presentations of Lynch Syndrome (LS), Familial Adenomatous Polyposis (FAP), MUTYH-Associated Polyposis (MAP), Juvenile Polyposis Syndrome (JPS), Peutz-Jeghers Syndrome (PJS), and Hereditary Mixed Polyposis Syndrome (HMPS) – all of which increase risk of bowel cancer, receive item numbers for testing on the MBS. (Items 73354, 73355, 73356)
“Lawrence Penn Chair research into bowel polyps receives $450,000 funding boost
Professor Mark Molloy’s cutting-edge research is awarded $450,000 funding over three-years following peer and consumer review, citing the research as being of great scientific merit and significant value to the community.Lawrence Penn Chair research into bowel polyps receives funding boost
“Bowel Cancer Australia supports ColoSTAT clinical trial
The clinical trial evaluates the performance of ColoSTAT as an in vitro diagnostic test (IVD) for the early detection of bowel cancer.Evaluation of the Clinical Performance of the ColoSTAT Diagnostic for colorectal cancer biomarkers
”
“Dr Zoe Welham awarded the inaugural Penn Foundation Scholarship
The $150,000 scholarship supports Zoe’s research comparing the microbiomes of polyps with varying risk of bowel cancer, to understand how the gut microbiome influences bowel polyp growth.The gut microbiome and bowel polyps
”
“Bowel Cancer Australia helps inform APAA’s position on the National Medicines Policy (NMP) terms of reference
The NMP Review represents an important opportunity to drive reform of the 20-year-old policy and ensure all Australians can receive the therapeutics they need at the right time. Bowel Cancer Australia and other members take part in four workshops to inform a position for the APAA on the NMP terms of reference.
“Bowel Cancer Australia a founding member of the Australian Patient Advocacy Alliance (APPA)
The Australian Patient Advocacy Alliance is a collective of national health organisations, working together to represent more than 12 million Australians living with complex and chronic disease.
The Alliance exist to provide better outcomes for all patients living with complex and chronic disease.
The Alliance works alongside national peak advocacy organisations to achieve reforms in the Australian healthcare system.”
“Surgery and radiation therapy wait-times published
Data indicates 50% of patients with a principal diagnosis of bowel cancer were admitted for surgery within 15 days; with 90% of patients with a principal diagnosis of bowel cancer admitted for surgery within 34 days.
90% of bowel cancer patients receive radiotherapy within 25 days of being assessed as ready for care.”
“MBS item changes announced for colonoscopy services
Following a five-year review of more than 5700 items on the Medical Benefits Scheme (MBS), the MBS Review Taskforce publishes dramatic changes to colonoscopy services. Changes to the MBS mean at-risk relatives are no longer able to receive Medicare-funded colonoscopies if parents diagnosed >55, and patients with no significant polyps must wait 5 years for surveillance colonoscopies.
“Bowel Cancer Australia named Best Small Charity of the Year
In recognition of its contribution to the third sector in a meaningful and impactful way that produces measurable benefits, Bowel Cancer Australia is honoured at the national Third Sector Awards. The charity’s strong, clear and purposeful vision and mission; engagement of stakeholders through innovative and unique marketing initiatives; impactful collaborations that drive organisational purpose; and design of solutions based on system-level change were all cited as reasons why it was chosen as the inaugural recipient of the prestigious honour.Bowel Cancer Australia named Best Small Charity of the Year 2019
”
“Lawrence Penn Chair research showcased at Global Conference
Lawrence Penn Chair research showcased at the Human Proteome Organisation (HUPO) World Congress.The gut microbiome and bowel polyps
“Bowel Cancer Australia launches My Colonoscopy Experience report
Bowel Cancer Australia releases initial findings from the first national My Colonoscopy Experience questionnaire. The questionnaire opens in September 2018 at the same time as the Colonoscopy Clinical Care Standard, created by the Australian Commission on Safety and Quality in Health Care (ACSQHC).
While the Standard was a welcome first step in outlining the care people who have a colonoscopy should receive, it doesn’t contain specific indicators to measure the patient’s experience.Every patient’s feedback is unique and valuable
”
“Bowel Cancer Australia becomes founding member of the Australian Patient Advocacy Alliance (APAA)
With a shared ambition to improve the health and wellbeing of all Australians through a health system that puts the consumer at its heart, members of the Australian Patient Advocacy Alliance (APAA) also share a commitment to drawing on patients’ lived experiences and embedding the patient voice at every step of the policy-making process.Australian Patient Advocacy Alliance
”
“The University of Sydney officially opens the Kolling Institute node of their Sydney Mass Spectrometry core facility
Made possible with a significant financial gift of $500,000 from Bowel Cancer Australia and Bowel Cancer Research Foundation Australia, the facility is established to support the research of the Lawrence Penn Chair of Bowel Cancer Research, Professor Mark Molloy PhD and his research team.Lawrence Penn Chair of Bowel Cancer Research
”
“National Bowel Cancer Screening Program data released
National Bowel Cancer Screening Program
- 4.1 million people were invited to participate in the NBCSP in 2016-17.
- 1.69 million people participated (41.3%).
- Only 15.5% of participants were recorded as receiving a follow-up colonoscopy within the recommended 30-day time frame.
- Of those participants who received the procedure following a positive screen, the wait varied between 112 and 184 days, depending on the State/Territory they lived.
“Prime Minister announces funding to address Tasmanian surgery and endoscopy wait-times
The Federal Government promises $34.7 million to reduce Tasmanian surgery and endoscopy wait-times and provide primary care support for Tasmanians in rural and remote locations through TazReach.
“Opposition Leader promises to invest $500 million to reduce wait-times for cancer treatment and surgery in public hospitals if elected
Citing official data, the Opposition Leader states 83 per cent of people who received a positive-test result from the government’s bowel cancer screening program did not have a follow-up colonoscopy within the recommended time.
“Bowel Cancer Lived-Experience Research Advisory Group formed
Consisting of people passionate about sharing what they have learned as a bowel cancer patient, or as a carer or loved one, members provide input into research and projects conducted by the Lawrence Penn Chair, commenting on design and development, as well as providing suggestions regarding relevance and sensitivity.
”
“$760,000 in grants secured by the Lawrence Penn Chair of Bowel Cancer Research
The Medical Research Future Fund $100,000 grant is used to investigate disease risk through molecular analysis of bowel polyps and identify biomarkers which could potentially be used to optimise colonoscopy surveillance intervals.
$60,000 in funding from the Colorectal Surgical Society ANZ Foundation supports new research to identify a biomarker that could indicate which early-stage bowel tumours might metastasise to lymph nodes, to inform surgical pathways.
The $600,000 grant from the Cancer Institute NSW enables further investigation into the prognostic contribution of immune cell infiltration in rectal cancer.Lawrence Penn Chair of Bowel Cancer Research
“More than a decade after launch, the NBCSP is finally implemented
People turning 50, 52, 54, 56, 58, 60, 62, 64, 66, 68, 70, 72 and 74 years of age will be sent a bowel cancer screening kit in the mailNational Bowel Cancer Screening Program
“Bowel Cancer Australia joins the Tasmanian Endoscopy Network
The Statewide Endoscopy Network (SEN) is responsible for the strategic direction and delivery of Endoscopy services across the continuum of care in the Tasmanian Health Service (THS).”
“Lonsurf lists on the PBS for the treatment of metastatic bowel cancer
Following several attempts, the oral chemotherapy is finally approved as a subsidised treatment for patients with mCRC who have previously been treated with fluoropyrimidine, oxaliplatin, and irinotecan-based chemotherapy, an anti-VEGF biological therapy, and an anti-EGFR therapy (if RAS wild-type).
“Updated clinical practice guidelines for surveillance colonoscopy released
Developed by the Colonoscopy Surveillance Guidelines Revision Working Party and chaired by former Bowel Cancer Australia Director, Dr Cameron Bell MD FRACP.”
“Bowel Cancer Australia launches My Colonoscopy Experience online questionnaire
The nationwide patient-reported experience (PREMs) questionnaire invites Australians to provide feedback about their colonoscopy experience, from referral to follow-up. The launch coincides with the release of the Colonoscopy Clinical Care Standard and highlights the value of including the patient experience when measuring outcomes as explained by actress and Bowel Cancer Australia Ambassador Miriam Margolyes.
“The ACSQHC launches a clinical care standard for colonoscopies
The Australian Commission on Safety and Quality in Health Care (ACSQHC) clinical care standard for colonoscopies covers the entire process from diagnosis to referral and beyond, with a focus on educating GPs. Bowel Cancer Australia provides input and feedback, but the ACSQHC chooses not to include recommendations such as the inclusion of patient reported experience measures (PREMs). Because the Standards lack the patient voice, Bowel Cancer Australia elects not to endorse the standards.
”
“South Australian Government commits $5 million to eliminate colonoscopy wait-list
The South Australian Government announces a $45 million investment to significantly reduce the number of overdue elective surgery patients in South Australia. A portion of the funding is earmarked to eradicate the overdue list for colonoscopy following a positive screen result by March 2019.
“Victoria commits to enforcing new Colonoscopy Guidelines for Victorian patients
A target is set to ensure all Victorian patients in urgent need of colonoscopy receive the procedure within 30 days.
“Bowel Cancer Australia launches bold campaign “Give a $#*! about your bowel”
Marking the start of Bowel Cancer Awareness Month 2018, the campaign captures the attention of Australians using computer-generated imagery in a high-impact commercial, featuring a ‘talking bowel’ voiced by well-known UK comedian Bill Bailey. The campaign wins numerous awards including the 2019 ADMA Creativity & Effectiveness Award (AC&E) for Best Campaign - Not for Profit; the 2019 PRIA Golden Target Award Pro Bono Campaign – National Winner; and the 2019 Siren Client Award in recognition of its ability to cut-through the noise with a compelling story.
”
“$10.4 million Lawrence Penn Chair of Bowel Cancer Research established at the University of Sydney
Bowel Cancer Australia through the Bowel Cancer Research Foundation Australia realises the long-term goal of establishing the $10.4 million Lawrence Penn Chair of Bowel Cancer Research at the University of Sydney - in perpetuity. Renowned proteomics researcher, Professor Mark Molloy PhD is appointed as the inaugural chair following an international search. The majority of funding comes from Bowel Cancer Australia, which commits $6.4 million to establish the position, which will be supported by additional funds of $4 million available to the University to advance research into bowel cancer.
“Bowel Cancer Australia calls for lowering the screening start age
The call coincides with the release of updated guidelines by the American Cancer Society for those at average risk of bowel cancer to begin screening from age 45 (previously age 50), in response to increasing rates of the disease in young and middle-aged populations.”
“The Big Bowel crosses Bass Strait for inaugural visit to Apple Isle
The highly anticipated trip to Tasmania includes stops at Hobart’s Salamanca Markets, the Devonport Terminal, Calvary Healthcare in Lena Valley, and the Bunnings in Glenorchy, North Launceston, and Burnie.
”
“Colonoscopy wait-time guarantee petition presented to House of Representatives and referred to Minister for Health
The Minister responds, stating that the Government will work with state and territories to develop an action plan that reflects their respective roles in ensuring capacity can meet the demand for colonoscopy services into the future, beyond the small percentage generated by the National Bowel Cancer Screening Program. His response concludes by stating ‘the Australian Institute of Health and Welfare (AIHW) will be tasked with including a 120-day reporting timeframe for waiting times to colonoscopy in future reports.Colonoscopy wait-time and performance guarantee
”
“National Bowel Cancer Screening Program data released
National Bowel Cancer Screening Program
- 3.17 million people were invited to participate in the NBCSP in 2015-16.
- 1.29 million people participated (40.9%).
- Only 15.6% of participants were recorded as receiving a follow-up colonoscopy within the recommended 30-day time frame.
- Of those participants who received the procedure following a positive screen, the wait varied between 114 and 197 days, depending on the State/Territory they lived.
“Health Ministers gather for the Council of the Australian Government (COAG)
The Ministers agree that the Commonwealth, states, and territories should work together to ensure future infrastructure and workforce capacity and development are better matched to address the increase in diagnostic colonoscopy demand.”
“Victorian Government commits $12 million to fast-track access and cut colonoscopy wait-times
The additional funding provides colonoscopies for 6,635 patients across Victoria who are in the most urgent category and who have been waiting the longest.”
“MedAdvisor partners with Bowel Cancer Australia to help Australians better manage their bowel cancer risk
The partnership enables pharmacists to initiate conversations with over 1 million Australians who may be at risk of developing the disease using an app available to more than 50 per cent of pharmacies nationwide.”
“ASCOLT trial secures additional $600,000 in funding to continue study from the PdCCRS
Tipped to be one of the most important global gastrointestinal cancer studies, ASCOLT seeks to determine if aspirin can reduce the recurrence of bowel cancer and improve survival after surgery. If aspirin therapy is found to be helpful it will provide an inexpensive, tolerable, and readily available treatment for bowel cancer patients.Aspirin for Dukes C and High-Risk Dukes B Colorectal Cancers
”
“Running for Bums - Jenna Brook’s incredible 4,500km journey from the bottom of Tasmania to the tip of Cape York
Jenna’s goal is to change the perception of bowel cancer, start a conversation about poo, and put an end to the embarrassment and stigma that has plagued this cancer.”
“Bowel Cancer Australia launches e-petition calling on House of Reps to address public hospital wait lists, which exceed medical guidelines in all states and territories
The petition receives over 3,500 signatures and significant media coverage and is presented to the House of Representatives in May.Colonoscopy wait-time and performance guarantee
“NBCSP continues rolling out
Australians turning 50, 54, 58, 60, 62, 64, 66, 68, 70, 72 and 74 years of age now eligible to receive a bowel cancer screening kit in the mail.National Bowel Cancer Screening Program
“First update of clinical practice guidelines for the prevention, early detection and management of colorectal cancer since 2005
The guidelines make testing for mismatch repair (MMR) deficiency of DNA in bowel cancer tumours standard. MMR is a characteristic feature of Lynch syndrome, which has a higher incidence in young onset bowel cancer. If the biomarker is found, family members may also be at risk of developing the disease, so surveillance is recommended. The guidelines also suggest that people aged 45–49 who request screening after being fully informed of the benefits and harms of testing, be offered a FIT test every 2 years by their GP, until their first routine invitation by the NBCSP at age 50.
The newly released guidelines recommend patients be referred to colonoscopy within a maximum 120-day threshold. Despite extending the recommended timeline-to-diagnosis by 300%, the new timeframes still go unmet.”
“Bowel Cancer Australia recognised as NGO of the Year
The award spotlights the remarkable impact the charity has on improving the health and wellbeing of people affected by bowel cancer, despite being a small team on a limited budget and serves as recognition of the collective efforts of colleagues and supporters, past and present, who have contributed to Bowel Cancer Australia’s success over many years. Bowel Cancer Australia”
“Bowel Cancer Australia involved in initial discussions, development, and review of medicinal cannabis clinical guidance
The guidance, released in December 2017, recommends THC-rich medicinal cannabis products for the prevention of Chemotherapy‐Induced Nausea and Vomiting (CINV) and palliative care should be prescribed only after standard treatments have failed.Guidance for the use of medicinal cannabis in Australia
”
“The Big Bowel tours Victoria, regional New South Wales, and Queensland
Over the course of three months, the Big Bowel travels over 11,000km, with stops in 24 locations, including South-eastern and Outback Queensland, making it the biggest Big Bowel Tour ever. Sponsorship by Tour de Cure enables the exhibit to visit rural, regional and retirement communities, where the 50-79 age group comprise at least one-third and up to one-half of the local population.
”
“Bowel Cancer Australia Advocate Jodie Elisara delivers speech to Queensland Parliament
Fighting through the side effects of day 2 round 3 of chemotherapy treatment, Jodie is joined by her peer-to-peer buddy Sarah Chaundy and Bowel Cancer Australia as she speaks to MPs about the importance of reducing wait times for colonoscopies and improving diagnosis times, while also highlighting that you are never too young for bowel cancer.Colonoscopy wait-time and performance guarantee
”
“Bowel Cancer Australia presents at the inaugural ICHOM Australasian Forum in Sydney
CEO Julien Wiggins shares how the charity is leading the way in the implementation of the colorectal (bowel) cancer standards, with the development of a patient-led platform designed to engage and educate patients about their treatment options.”
“National Bowel Cancer Screening Program data released
National Bowel Cancer Screening Program
- 2.6 million people were invited to participate in the NBCSP in 2014-15.
- 1.01 million people participated (38.9%).
- Only 16.4% of participants were recorded as receiving a follow-up colonoscopy within the recommended 30-day time frame.
- Of those participants who received the procedure following a positive screen, the wait varied between 116 and 181 days, depending on the State/Territory they lived.
“Bowel Cancer Australia Ambassador Anton Enus shares his story about the five minutes that saved his life
“Me? The one who ran marathons and whose greatest joy was chasing a ball around a tennis court for hours, who did yoga and had no family history of bowel cancer,” Anton wrote in a candid article published nationally about his bowel cancer experience.
”
“Parliament House Reception
Bowel Cancer Australia meets with parliamentarians to discuss the issues and needs of Australians affected by bowel cancer and actions they can take as elected officials to show their support and make a positive difference in the lives of their constituents.”
“National Bowel Cancer Screening Program ages
People turning 50, 54, 55, 58, 60, 64, 68, 70, 72 and 74 years of age are now eligible to participate in the NBCSP.National Bowel Cancer Screening Program
“Bowel Cancer Australia supports new blood test for bowel cancer
A new, more accurate blood test for bowel cancer developed by Australian scientists could lead to a reduction in the number of deaths from the disease. The innovation, known as Colvera, is the result of a collaboration between CSIRO, Flinders University and Clinical Genomics, who launched the product in the United States.”
“Bowel Cancer Australia joins the ASBM as an international member partner
Formed in 2010, the Alliance for Safe Biologic Medicines (ASBM) works to ensure that patient safety is at the forefront of biosimilar policy discussion, by communicating the perspectives of patients and their healthcare providers.Alliance for Safe Biologic Medicines
”
“Bowel Cancer Australia partners to support the first Shepparton based Bowel Care Nurse
Bowel Cancer Australia increases access to quality patient care through the expansion of its Bowel Care Nurse team to include a nurse dedicated to serving the Shepparton Valley and Goulburn Valley region, with support from with Goulburn Valley (GV) Health, the Shepparton Biggest Ever Blokes Lunch committee and the Georgopolous family.”
“Bowel Cancer Australia invited to provide feedback to Senate Committee regarding proposed National Cancer Screening Register Bill
When presenting to Senate, Bowel Cancer Australia acknowledges the need for a consistent and contemporary register to monitor and support timely activity for the NBCSP and supports the intent of the bill, but says the proposed register is a missed opportunity to adopt a holistic approach that focuses on patient outcomes across the continuum.National Bowel Cancer Screening Program
“Bowel Cancer Australia launches World mCRC Day with international partners
The day is dedicated to raising awareness about the most advanced form of bowel cancer, known as metastatic colorectal cancer or mCRC. Charities across the globe share vital information about biomarkers along with compelling stories from patients living with the deadly disease.”
“The Big Bowel goes on tour in Western Australia and New South Wales
The inflatable replica of a human bowel travels to Royal Perth Hospital and visits Hurstville Private Hospital in New South Wales. It also makes an appearance at the Cook’s River Fun Run in Strathfield and the Tour de Cure in Forster, NSW.
“National Bowel Cancer Screening Program data released
National Bowel Cancer Screening Program
- 2.23 million people were invited to participate in the NBCSP in 2013-14.
- 836,457 people participated (37.3%).
- Only 17.4% of participants were recorded as receiving a follow-up colonoscopy within the recommended 30-day time frame.
- Of those participants who received the procedure following a positive screen, the wait varied between 120 and 177 days, depending on the State/Territory they lived.
“National survey reveals bowel cancer symptoms continue to be dismissed
Bowel Cancer Australia builds on research commissioned in 2014 to better understand and advocate for Australians impacted by bowel cancer, and conducts follow up study called ‘My Bowel Cancer, My Voice.’ The research reveals 1-in-5 respondents who presented to their GPs with symptoms felt they were not taken seriously, and 2-in-5 had to visit their GP two or more times before receiving a diagnosis.”
“The world-first ICHOM Colorectal Cancer Standard Set is released
Presented for the first time on May 17 at the 2016 International Consortium for Health Outcomes Measurement (ICHOM) Conference at University College London, UK, the Colorectal Cancer Standard Set provides healthcare providers a unique opportunity to share data and learn from one another through one global standard that reflects the issues that matter most to bowel cancer patients.ICHOM Standard Set for Colorectal Cancer
”
“Bowel Cancer Australia launches bowelcancer.care
The free, Australian College of Nursing (ACN) endorsed online course provides nurses working in cancer care with an overview of the unique needs of bowel cancer patients and includes strategies for improving patients’ outcomes and quality of life.”
“Ground-breaking report, In the Crosshairs of Colorectal Cancer released
Authored by respected social demographer Bernard Salt, the report examines the confronting demographic issues behind bowel cancer through national profiling and mapping and highlights the Australian communities most at risk.In The Crosshairs of Colorectal Cancer
”
“Bowel Cancer Australia highlights role pathology plays
The initiative with Know Pathology helps educate the public about the vital work done in laboratories in relation to bowel cancer screening, detection and management of disease.”
“Bowel Cancer Australia joins the Global Colon Cancer Association
Advocating for patient-centred policy around the world, the GCCA unites stakeholders in a battle against bowel cancer with one unified voice.Global Colon Cancer Association
”
“More ages become eligible for the National Bowel Cancer Screening Program
The Program expands to include people turning 50, 55, 60, 64, 65, 70, 72 and 74 years of age.National Bowel Cancer Screening Program
“Bowel Cancer Australia input requested into national safety standard
The Australian Commission on Safety and Quality in Health Care (ACSQHC) consults with Bowel Cancer Australia and other stakeholders on a national safety and quality model for colonoscopy services.Colonoscopy Clinical Care Standard
“Vectibix PBS listing amended
Vectibix listing on the Pharmaceutical Benefits Scheme (PBS) is amended to include first-line treatment for patients with RAS wild type metastatic bowel cancer.
“Bowel Cancer Australia releases the ‘Lifting the Lid on Advanced Bowel Cancer’ report
Urging elected representatives to make bowel cancer a priority, recommendations include addressing investment inequities in cancer research, awareness and support services; ensuring treatment reimbursement decisions consider the limited options available; collecting national data on advanced bowel cancer to better inform treatment decision; and mandating an ‘opt-out’ system for molecular research to speed-up research efforts.Lifting The Lid on Advanced Bowel Cancer
”
“Bowel Cancer Australia co-sponsors the ICHOM Colorectal Cancer Working Group
Furthering the charity’s commitment to evidence-based, high-quality programs that deliver better patient outcomes, Bowel Cancer Australia co-sponsors the development of the first International Consortium for Health Outcomes Measurement global standard in care for bowel cancer patients. The world-first initiative brings together more than 200 bowel cancer patient advocates from Australia, North America and Europe, to share their lived experience and their personal perspectives on treatment and management, to help shape a global standard in care.”
“National Bowel Cancer Screening Program data released
National Bowel Cancer Screening Program
- 1.41 million people were invited to participate in the NBCSP in 2013-14.
- 509,736 people participated (36%)
“Erbitux PBS listing amended
Erbitux listing on the Pharmaceutical Benefits Scheme (PBS) amended to include first-line treatment option for patients with RAS wild-type metastatic bowel cancer.
“Avastin PBS listing amended
Listing of Avastin is amended on the Pharmaceutical Benefits Scheme (PBS) to include second-line treatment of patients with RAS wild-type metastatic bowel cancer.
“The Big Bowel tours regional NSW and regional Victoria
The educational exhibit stops in at community centres, shopping malls, health expos and outdoor events in Albury-Wodonga, Deniliquin, Shepparton, and Swan Hill, reaching populations particularly vulnerable to bowel cancer.
“Nationals MPs encourage Australians to check their bowels
Nationals MPs Barnaby Joyce, Keith Pitt and David Gillespie schedule long-overdue bowel screening tests for themselves and encourage Australians to do the same during Bowel Cancer Awareness Month.
Bowel Cancer Australia CEO Julien Wiggins thanks the MPs and welcomes the Government’s listing of Erbitux and Avastin on the PBS as first-line and second-line treatment options for patients with metastatic bowel cancer.”
“Bowel Cancer Australia Ambassador Erin Molan and sister Sarah Sutton share a very personal story about the impact of bowel cancer
”I had no idea that bowel cancer could affect young women like Sarah. She was 29 and enjoying life with her husband and two little children when she was diagnosed,” said Erin.
The TV segment was awarded the 2015 Colorectal Surgical Society of Australia & New Zealand (CSSANZ) Media Award.
”
“Bowel Cancer Australia calls for timely and affordable access to new and innovative therapies in government submission
Described as being influential in the decision-making process, the submission highlights concerns about inequities in the availability of affordable treatments compared to its burden of disease, and results in the listing of RAS biomarker testing on the MBS from January 2015.
In addition, Avastin, Erbitux and Vectibix listings are all amended on the MBS and PBS respectively, as subsidised treatment options for people with advanced bowel cancer.
“The National Bowel Cancer Screening Program continues its roll out to include more ages
People turning 50, 55, 60, 70 and 74 years of age now included.National Bowel Cancer Screening Program
“Bowel Cancer Australia advocates listing of RAS biomarker test on MBS
From January 1, 2014 MBS item 73338 includes genetic testing for RAS mutations in tumour tissue of metastatic bowel cancer patients. The amendment paves the way for changes to the PBS, providing subsidised access to more treatment options for patients with RAS wild-type metastatic bowel cancer.What is RAS biomarker testing?
“Bowel Cancer Australia launches ‘Never2Young’ (N2Y) initiative in coordination with global partners
In response to local and international evidence indicating rising rates of young-onset bowel cancer, the N2Y initiative is created to raise awareness that you’re never too young to develop bowel cancer. Bowel Cancer Australia also begins providing tailored resources with practical information regarding the unique challenges faced by patients under 50.
“The Australian Cancer Consumer Network (ACCN) invites Bowel Cancer Australia to be an inaugural member
Dan Tehan MP and Senator Deborah O’Neill launch The Australian Cancer Consumer Network (ACCN) at Parliament House in Canberra, forming the first umbrella organisation to represent cancer consumer groups.
The new network unites 30 cancer consumer groups and organisations to share information and experiences.Australian Cancer Consumer Network
”
“Bowel Cancer Australia updates MPs and Senators on latest research regarding community awareness and understanding of bowel cancer at Parliament House reception
The need to improve access to biomarkers and bowel cancer treatments and expand the NBCSP to every 2 years from age 50, in accordance with medical guidelines, is also discussed.
MPs and Senators also hear from patient advocate Robyn Lindley, who shares her lived experience in a discussion with colorectal surgeon A/Prof Professor Graham Newstead.”
“MP says it starts with making a vow to talk bowels at Victorian Parliament Reception
Member for Carrum, Donna Bauer shares her personal bowel cancer experience with fellow MPs at the reception, where fines imposed on MPs by the Victorian Legislative Assembly throughout the year are collected and donated to Bowel Cancer Australia.”
“The Victorian Department of Health develops the Bowel Cancer Prevention and Early Detection Communications Common Interest Group
The Group provides a forum to develop consistent communication messages for community members and health professionals, on the prevention and early detection of bowel cancer in Victoria. Members develop a work plan that outlines priority deliverables to guide activity over the coming 12 months.”
“Bowel Cancer Australia partners with the NRL to Kick Bowel Cancer
The campaign runs across the NRL Telstra Finals Series with the aim of raising awareness, reducing stigmas, and encouraging people to take action to prevent bowel cancer. It features Bowel Cancer Australia Ambassador Chris Heighington whose dad was diagnosed with bowel cancer at age of 65.
”
“National Bowel Cancer Screening Program data released
National Bowel Cancer Screening Program
- 963,518 people were invited to participate in the NBCSP in 2012-13.
- 321,413 people participated (33.4%)
“Old Parliament House lights up in red and green for Bowel Cancer Awareness Month
Bowel Cancer Australia’s colours of red and green are used to light up the Museum of Australian Democracy (Old Parliament House) in Canberra, along with other iconic landmarks, including the heritage listed Story Bridge in Brisbane. The special reminder in recognition of Bowel Cancer Awareness Month becomes an annual event.”
“Bowel Cancer Australia publishes the My Cancer, My Voice report
Published in the lead up to Bowel Cancer Awareness Month, the report highlights the lived experience of bowel cancer patients, following the first national patient survey of its kind. The findings are used to call on Government to bring funding into line with the burden of disease, improve bowel cancer support, and ensure timely access to new treatments. In recognition of its impact, Bowel Cancer Australia is awarded the Australian Doctor Group (ADG) PRIME Award for Corporate Social Responsibility.”
“Australian Government commits additional funding to accelerate implementation of the NBCSP
Following Bowel Cancer Australia’s advocacy efforts, the incoming Coalition Government announces an additional $95.9 million over four years in the 2014 Federal Budget, to accelerate implementation of the National Bowel Cancer Screening Program to all Australians aged 50 to 74 years by 2020. This followed Bowel Cancer Australia’s efforts in highlighting the former Labor Government had only committed to full implementation by 2034.National Bowel Cancer Screening Program
“Vectibix lists on the PBS
The listing on the Pharmaceutical Benefits Scheme (PBS) enables patients with KRAS wild type mCRC to access the subsidised treatment after failure of first-line chemotherapy.
“Bowel Cancer Australia and Cancer Australia commit $553,000 towards international research
Tipped to be one of the most important global gastrointestinal cancer studies, ASCOLT seeks to determine if aspirin can reduce the recurrence of bowel cancer and improve survival after surgery. If aspirin therapy is found to be helpful it will provide an inexpensive, tolerable, and readily available treatment for bowel cancer patients.Aspirin for Dukes C and High-Risk Dukes B Colorectal Cancers
“Get Tested biomarker initiative launches
International bowel cancer charities join to identify and address barriers to improving survival rates and to challenge inequities in access to the best treatment and care for mCRC patients, within and between countries. Organisations involved include Bowel Cancer Australia, Bowel Cancer UK, Colon Cancer Alliance, Colorectal Cancer Canada, EuropaColon, Fight Colorectal Cancer, and Fondation A.R.C.A.D. The organisations go on to launch Get Personal and World mCRC Day in 2016.
“Bowel Cancer Australia releases the world’s first bowel cancer app
Operating like a personal patient navigator, the app features in the top 100 medical apps and earns the charity an Australian Doctor Group (ADG) PRIME award in 2016 for Excellence in Patient/Customer Support.
”
“The NBCSP Communication Strategy Working Group is established
Bowel Cancer Australia provides important insights from the patient and carer perspective, along with input from the charity’s medical directors.”
“Bowel Cancer Australia joins VPTAS
The Victorian Patient Transport Assistance Scheme (VPTAS) aims to offset the travel and accommodation costs of people living in regional and rural Victoria who need to travel for specialist medical treatment.”
“Expansion of the National Bowel Cancer Screening Program (NBCSP)
People turning age 60 begin receiving a bowel screening kit in the mail, along with those turning ages 50, 55, and 65.National Bowel Cancer Screening Program
“National Bowel Cancer Screening Program data released
National Bowel Cancer Screening Program
- 929,433 people were invited to participate in the NBCSP in 2011-12.
- 325,276 people participated (35%)
“Bowel Cancer Australia exclusive partner for GP materials via Medical Director
In partnership with HealthShare, Bowel Cancer Australia becomes NGO partner, providing informative factsheets to support GPs in discussing bowel cancer and managing risk with their patients.”
“Bowel Cancer Research Foundation Australia launched
To address the inequity in cancer research funding, Bowel Cancer Australia establishes the Bowel Cancer Research Foundation Australia to support and sustainably fund research into the causes, prevention and treatment of bowel cancer. With support from donors, the Foundation contributes to a vital pipeline of bowel cancer research talent that helps carry Bowel Cancer Australia’s mission forward.Bowel Cancer Research Foundation Australia
”
“Bowel Cancer Australia appears before the House of Representatives Petitions Committee regarding the NBCSP
The charity utilises the opportunity to reinforce calls made in the Bowel Cancer Challenge 2016 for improved uptake, Program expansion, and timely access to diagnostic colonoscopies following a positive test, to succeed in the NBCSP’s objective of reducing deaths from bowel cancer.National Bowel Cancer Screening Program
“Bowel Cancer Australia commissions Australian-first research into the patient lived-experience
The qualitative survey aims to increase awareness and understanding of the impact bowel cancer has on patients and carers in Australia.”
“Bowel Cancer Australia launches the Bowel Cancer Challenge 2016
The Challenge continues the work set out in 2012, highlighting key goals in relation to education and awareness about bowel cancer; improved uptake of the NBCSP; Program expansion to include more ages; timely access to diagnostic colonoscopies and improved access to treatment options.”
“KRAS biomarker testing becomes available under MBS Item #73330
KRAS is a predictive biomarker which helps determine if targeted therapies such as Erbitux (cetuximab) and Vectibix (panitumumab) will be successful. The listing paves the way for better access to these treatment options.KRAS biomarker testing
“National Bowel Cancer Screening Program data released
National Bowel Cancer Screening Program
- 2.09 million people were invited to participate in the NBCSP in 2008-11.
- 806,480 people participated (38.4)%
“First Clinical Practice Guidelines for Surveillance Colonoscopy published
The Colonoscopy Surveillance Working Party is chaired by Bowel Cancer Australia Director, Dr Cameron Bell MD FRACP who also provides input to the Guidelines.”
“Bowel Cancer Australia and CSSANZ join forces for a stronger voice on bowel cancer
The collaboration between Australia’s peak body for bowel cancer patients and carers and Australia and New Zealand’s peak professional body for colorectal surgeons boosts bowel cancer awareness and education through greater ‘on the ground’ resources.”
“Bowel Cancer Australia and CSSANZ work to elevate the bowel cancer voice
Australia’s peak body for bowel cancer patients and carers works with Australia and New Zealand’s peak professional body for colorectal surgeons to give bowel cancer a stronger, local voice.
“Erbitux lists on the PBS after a record 8 submissions to the PBAC
After 14 months of advocacy efforts, Erbitux (cetuximab) becomes available on the Pharmaceutical Benefits Scheme (PBS) for patients living with KRAS wild-type metastatic bowel cancer who don’t respond to first line chemotherapy. Patients must have their tumour tested to determine if they carry the KRAS wild type gene. The test is funded by the manufacturers of Erbitux until May 2012, when KRAS testing finally becomes available under the MBS.
“Bowel Cancer Australia develops national Peer-to-Peer Support Network for patients and loved ones
Underpinned by the Bowel Care Nurses and Nutritionists, the Peer-to-Peer Network is Australia’s first national bowel cancer support group that connects patients and loved ones, enabling members to give and receive advice about their bowel cancer experience in an informal and mutually beneficial way.”
“Bowel Cancer Australia introduces the country’s only dedicated Bowel Care Helpline
The Helpline offers free telenursing and telenutritionist services nationwide. With expertise in intensive care, oncology, stomal therapy, and nutrition, Bowel Cancer Australia’s friendly nurses and nutritionists assist patients, family, friends, and concerned members of the community.Bowel Care Nurses (telenursing) | Bowel Care Nutritionists (telenutrition)
“Bowel Cancer Australia launches online support forum for patients and loved ones
Bowel Cancer Australia and Healthshare, Australia’s first social online health network, collaborate to enable patients and loved ones to connect with others who share similar experiences supported by Bowel Care Nurses, Nutritionists and specialists.”
“Bowel Cancer Australia launches BowelScreen Aotearoa (NZ)
In collaboration with Bowel Cancer New Zealand and Green Cross Health, Bowel Cancer Australia develops BowelScreen Aotearoa (NZ), providing greater access to bowel cancer screening throughout New Zealand. It is the same clinically proven, sensitive, and reliable faecal immunochemical test (FIT) used in Australia, with accredited pathology services provided by Clinical Genomics.”
“Bowel Cancer Australia partners with patients and loved ones to petition Parliament
Directed to the attention of the Hon Nicola Roxon, Minister for Health, the House of Representatives petition calls for the full implementation of the NBCSP, as more and more lives are lost due to late detection of the disease.
”
“Bowel Cancer Australia and The Bowel Cancer Foundation merge
With a shared dedication to prevention, early diagnosis, research, quality treatment and the best care for everyone affected by bowel cancer, the two leading bowel cancer charities keep the name Bowel Cancer Australia and operate as the country’s only 100% community-funded bowel cancer charity.”
“National Bowel Cancer Screening Program data supplement released
National Bowel Cancer Screening Program
- 685,000 people were invited to participate in the NBCSP in 2008.
- 274,123 people participated (40.1%)
“Bowel Cancer Australia Ambassador George Calombaris and his father Jim feature in latest awareness campaign
George’s father, Jim, has been diagnosed with bowel cancer twice – once when George was only 6 years old and again when he was 16. The second diagnosis was discovered through regular screening. “My dad is a bowel cancer survivor. His second diagnosis was a big turning point in my life and I want to share my family’s experience as a way to motivate others to discuss their family history and know their bowel cancer risk,” said George.
”
“Bowel Cancer Australia and The Pharmacy Guild launch BowelScreen Australia
Coinciding with Bowel Cancer Awareness Month, the initiative makes at-home screening accessible to anyone who wants to screen according to their personal level of risk, through community pharmacies.
BowelScreen Australia uses a clinically proven, sensitive, and reliable faecal immunochemical test (FIT). The Australian designed and manufactured test and accredited pathology services are provided by Clinical Genomics.
“National Bowel Cancer Coalition launches Spotlight on Screening report
The National Bowel Cancer Coalition releases Spotlight on Screening, advocating for full implementation of the NBCSP, highlighting three fundamental issues key to the long‐term success of the Program – expansion, promotion, and increased participation.
”
“Bowel Cancer International grows to include two more charities
The alliance welcomes the addition of the Colorectal Cancer Association of Canada and Beat Bowel Cancer New Zealand, increasing the impact the charities have on their own.”
“Bowel cancer survivor, Sandy Hoby, conquers Mount Everest
On the Australian Geographic funded expedition, husband and wife team, Brad Jackson and Sandy Hoby, along with fellow teammates Peter Wells, Darren Robertson and Stephen Bock (whose father died from bowel cancer) successfully summit the world’s highest mountain (8,848 metres), raising awareness and funds for Bowel Cancer Australia.
”
“Beat Bowel Cancer Aotearoa (NZ) launches
Founded by a group of people affected by bowel cancer, with the support of clinicians along with Bowel Cancer Australia, Beat Bowel Cancer Aotearoa commits itself to improving bowel cancer awareness in New Zealand.”
“Bowel Cancer Australia begins mapping bowel cancer data
Updated annually from the most current sources of information publicly available, the Bowel Cancer Atlas provides data at the Local Government Area (LGA), state and territory level, and at a national level, to help identify unhealthy behaviours that can be improved to reduce bowel cancer risk.”
“National Bowel Cancer Screening Program data released
National Bowel Cancer Screening Program
- 685,915 people were invited to participate in the NBCSP in 2008.
- 251,152 people participated (36.6%)
“Bowel Cancer Australia provides support to Binational Colorectal Cancer Audit (BCCA)
In line with the charity’s commitment to gathering meaningful real-world information that can improve patient outcomes, Bowel Cancer Australia engages a support person to upload surgical data into the large scale BCCA Clinical Quality Registry.”
“Avastin lists on the PBS for metastatic bowel cancer patients
After 12 months of advocacy work, the biologic Avastin lists on the Pharmaceutical Benefits Scheme (PBS) as a subsidised treatment option, in combination with first-line chemotherapy, for patients with previously untreated metastatic bowel cancer. Avastin also lists as a continuing PBS-subsidised treatment, in combination with first-line chemotherapy, for patients who previously received PBS-subsidised treatment with Avastin and did not have progressive disease.
“Lara (Bingle) Worthington partners with Bowel Cancer Australia as the charity’s inaugural ambassador
The model and businesswoman uses her celebrity status to get Australians talking about the risks of bowel cancer in the charity’s highly successful Love My Family media campaign.
”
“Bowel Cancer International Alliance forms
The international alliance unites charities from around the world in the global fight against bowel cancer, enabling them to share information and resources. Inaugural members include Bowel Cancer Australia and Beating Bowel Cancer Australia UK. Membership grows with the addition of the Colorectal Cancer Association of Canada and Beat Bowel Cancer New Zealand in June 2010.
”
“The National Bowel Cancer Screening Program is suspended due to faulty test kits
Nearly half a million screening tests are recalled and the program is suspended for six months following an unusual decline in the number of positive test results. It is believed, some of the tests may have been faulty due to high temperatures.
Testing resumes in November with a new kit initially distributed to re-screen those who received the faulty kits. However, the new kit is recommended for use only up to 30 degrees Celsius creating potential problems for many regions.National Bowel Cancer Screening Program
“The National Bowel Cancer Coalition launches the Bowel Cancer 2012 Challenge
The NBCC’s 2012 Challenge is to see a significantly increased profile of bowel cancer within Australia and to improve patient outcomes. The Challenge sets out four key goals to be achieved by 2012: a coordinated awareness campaign to raise the profile of bowel cancer; expansion of the NBCSP in accordance with NHMRC guidelines; resourcing for access to timely diagnosis and clinically effective treatments for all patients; and recognition of the value of prolonged, quality life. The Coalition also calls on Federal Government to publish targets, monitor uptake of the screening program and take steps to improve the uptake among all groups.”
“National Bowel Cancer Screening Program data released
National Bowel Cancer Screening Program
- 929,329 people were invited to participate in the NBCSP in 2006-08.
- 369,049 people participated (39.7%)
“Bowel Cancer Australia partners with other organisations to establish the National Bowel Cancer Coalition
The Coalition aims to set the agenda for improvements in the prevention and management of bowel cancer.”
“The NBCSP extended to include people turning 50
Biennial at-home FIT screening becomes available to people aged 50, 55, and 65.National Bowel Cancer Screening Program
“Bowel Cancer Australia appointed to the NBCSP Clinical Advisory Board and the NBCSP Communications Working Group
The independent charity provides input on the roll out of the Program and the development of a national communications framework. The NBCSP Communications Framework is presented to the Department of Health in November.”
“National Bowel Cancer Screening Program data released
National Bowel Cancer Screening Program
- 436,153 people were invited to participate in the NBCSP in 2006-07.
- 149,262 people participated (34.2%)
“Bowel Cancer Australia launches the inaugural NBCSP media campaign, It’s Crunch Time
Featuring Australian Test cricketer and sports commentator Max Walker AM, the campaign promotes participation among eligible Australians in Phase I and II of the National Bowel Cancer Screening Program.
”
“National Bowel Cancer Screening Program (NBSCP) officially launches
The Australian Government begins sending taxpayer-funded screening tests in the mail to all Australians turning 55 and 65 years old between May 2006 and June 2008. Kits are also sent to all individuals who participated in the initial Pilot Program.National Bowel Cancer Screening Program
“Bowel Cancer Australia website unveiled
The website fast becomes the top-ranking source for bowel cancer information in Australia, with over 77,000 patient publications downloaded in the first year.Bowel Cancer Australia website
”
“First updates to the Clinical Practice Guidelines for the Prevention, Early Detection and Management of Colorectal Cancer published
The Guidelines will not be updated again for another twelve years.”
“Bowel Cancer Australia conducts first national community research surveys
Trend data gauging community awareness and understanding of bowel cancer is collected from 2004, 2007, 2012, 2014, 2016 and 2017, with results reported in white papers and national media campaigns.”
“The Australian government launches a Bowel Cancer Screening Pilot Program
The Pilot runs until June 2004, trialling the mail out of taxpayer-funded faecal immunochemical tests (FIT).”
“Bowel Cancer Australia begins delivering Get Your Rear in Gear presentations
As part of the charity’s commitment to workplace wellness, Get Your Rear in Gear presentations become available nationwide, educating employees and employers about the importance of taking appropriate action towards prevention and early detection of bowel cancer.”
“Red Apple Day is launched as a focus for Bowel Cancer Australia’s fundraising activities
All funds raised from the sale of Red Apple merchandise support community awareness activities, patient services and important medical research. The event becomes the charity’s biggest fundraising day of the year.”
“Bowel Cancer Australia launches the country’s first Bowel Cancer Awareness Week
The campaign features a strong advertising and public relations campaign using all forms of media, with bowel cancer messages appearing on everything from buses to backs of toilet doors. The campaign becomes the charity’s signature event for raising awareness of Australia’s second deadliest cancer and evolves into Bowel Cancer Awareness Month.”
“Bowel Cancer Australia established
With funds provided through a patient grant, a small group of medical specialists create Bowel Cancer Australia, in response to a lack of government support or funding for research into the country’s second deadliest cancer.”
“Inaugural Clinical Practice Guidelines for the Prevention, Early Detection and Management of Colorectal Cancer published
Endorsed by the National Health and Medical Research Council (NHMRC), the Australian guidelines aim to provide information and recommendations to guide practice across the continuum of cancer care and are widely used as a reference by health practitioners including GPs and specialists, to guide clinical practice. They do not cover surveillance colonoscopy.”
“The Colorectal Foundation launched by A/Prof Graham Newstead AM
The independent non-profit organisation dedicated to raising bowel cancer awareness is later renamed The Bowel Cancer Foundation.”
“A/Prof Graham Newstead AM appointed Chairman of the International Council of Coloproctology (ICCP)
Representing over 50 national and international societies of Coloproctology, bowel cancer awareness and prevention is a permanent item on the ICCP’s program of worldwide activities.International Council of Coloproctology
”
